School Work 10/17/2016

Now that midterms are over, schoolwork has picked up again. It’s been constant naps, and homework, and work, and classes. Luckily this weekend I got most of my work done early, and I was able to go to the city with my boyfriend and spend some time with his family. He also has the cutest dogs, and I miss my dog, so they are a good substitute.

It was so nice to see them, and his mom who taught me how to knit said my knitting was doing good. So that’s awesome!

On Sunday when we were planning to go back to school with one of our mutual friends I got a mild headache that wouldn’t go away. I tried everything, but I ended up having to lie down in the back seat the whole ride back to campus. I was glad that we had our friend with us so my boyfriend wouldn’t be stuck with no one to talk to.

I usually get bad headaches about once every two to three weeks, but because I have been extra busy this past week, I have been having more. I just have to remember to stay hydrated, and put taking care of my body over schoolwork sometimes.

All in all it was a fun weekend, and a productive week. I take pride in keeping up with my schoolwork, even if I get more headaches.

Hoping for another productive week!

 

~Maddie

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Taking Medication 10/5/2016

I take two pills when I wake up, then two every four hours until I go to bed. Along with that I take up to ten salt pills a day, depending on what I am doing that day.

Taking all of these medications every day can get really boring, but it is only part of my treatment, so I try to make it as fun as possible.IMG_20161005_215204454.jpg

I got a small pill case that is decorative. It holds three doses, and has a clasp that keeps it closed. I use it when I have to take doses when I am out of the house. I have never been afraid, or cautious to take medication around people, the decorative case is more for me. It makes me want to take my medication with me, and most people focus more on the case rather than asking me about my medication. An added bonus is that sense I have been using the case more people assume that I have been taking medication for a while, and I personally think it catches people off guard when I just pull out pill bottles.

I try to make taking my medication as easy as possible. I found that I won’t take my meds because I either don’t want to get up, or interrupt what I am doing. To counteract this, I try and have my meds with me when all possible, or I have them easily accessible. That way it is not a large interruption when I have to take them.

I have to keep reminding myself that if I don’t take the meds I will feel sick, and that is never fun. There are some days when I feel like crap, and taking my medication does nothing to help. Those days are the hardest to get through. You can do everything perfectly, and still not feel better. I just have to trust that I will get through this, and keep a close eye on how I feel, knowing that if it gets too bad I need to go to the hospital.

As long as I can keep my head up and my pills down, it is a good day.

 

~Maddie

Medical Alert Swag

This is why I wear a medical alert bracelet or necklace. Some people think that because POTS will not kill you, you don’t have to worry about wearing a medical alert bracelet. As far as I understand it, because I am on medication for my POTS, if I were to be given something that could interact with those medications it would cause a bad side effects.

What my medical alert things say:96c7ded75615b8889b6dcdf5373415b4

Dysautonomia

POTS

Beta Blocker

Give IV Fluids

(My mothers phone number)

I put dysautonomia as well as POTS for two main reasons. One being that because POTS isn’t widely known, an EMT may not know what it means, but most are familiar with the term dysautonomia. However, the main reason is that “postural orthostatic tachycardia syndrome” wouldn’t fit on the jewelry that I wanted.

I decided to put beta blocker because, as I understand it, if I am found unconscious and EMT might give me something that could react with the beta blocker. I also feel safer with knowing that I don’t have to be conscious, or aware, in order to tell someone what medication that I am on.

I don’t know if putting “give IV fluids”, the EMT is more likely to give them, but it would be nice that if I fainted and was out of it, to wake up with an IV already in. No begging for fluids, and I was out of it for the needle prick!

I recommend putting someones phone number on your alert swag, that way if there are any questions that need to be answered they have a number to call. I do not live in the same state as my mother, but she knows the most about my POTS, and would be able to answer any questions that the medical staff, or just people in general, would have. I know I feel a lot safer knowing that if something bad were to happen my mother is always there to help me out (she also presented the diagnosis of POTS to the doctors to confirm. She’s pretty awesome).

I have a necklace and a bracelet that both have my medical alert information on them. I like having two options, because if I want to wear a necklace then I wear the bracelet, but mostly I wear the necklace for convenience.

When I told my boss that I had POTS I also told them that I always wear my medical alert information, and if I ever pass out and don’t come too, to call the number. I would rather have my mother assess the situation and tell them if I need to go to the hospital or not. Usually I come to right after I pass out, but sometimes it takes me a little while before I can hold a conversation, and again, it is nice having this safety net. Saying this, I feel, also put my boss at ease. It took most of the pressure off them.

I have never been in a situation that has warranted the use of the medical alert jewelry, but you can never be too prepared.

Information about POTS

Importance of wearing a medical ID

 

~Maddie